Therapy is going amazingly. We hear from Maddy's therapists each week she has made more progress. When I picked her up from daycare today the teachers had a funny story to share. Maddy has a little buddy who has also just started to crawl. When one of them sees the other with a toy, they will often crawl over to get it. Maddy apparently does not like her toys being taken away and decided to push the other little boy over and crawl on top of him like she was pinning him in a wrestling match (he was not hurt by the way). While I felt bad that my kid was "the bully", I was so happy she was physically able to do this and my heart melted that she is interested in playing with another baby. At one time, there was a question of Autism due to her lack of eye contact and the difficulty we had engaging her, and now my little girl will often climb up me just to watch my face and gives hugs.
OT is helping us work on oral motor skills as well as her posture, and releasing objects when asked. PT is having us work on pulling up to standing, cruising and her core strength. We are working with Early On to do some work on her sensory issues. They recommended doing things like joint compression and "messy play" to desensitize her to the feeling on her hands. We will also be using uncooked rice to get her used to the feeling and texture on her hands. They have also given us some exercises to check how her depth perception is.
But.... there has been some question of her vision lately, and whether or not the bifocals are the right decision for her. We were encouraged to get a second opinion from a more experienced doctor, and while this seems simple enough, it is opening a whole new can of worms. The more experienced doctor in the area (there are only really two or three pediatric specialists within 3 hours from us) works out of the same office as our current doctor and is so busy that they booking appointments for September now. While this other doctor is more experienced, our current doctor was trained more recently which could mean more updated information and techniques. She preformed both of Maddy's first two surgeries and has been a great support to us over the past year. What if we get a different answer than the ones previously given to us? Who do we trust and listen to and how do we know what the right thing to do? Both are excellent doctors. While I know both doctors are professionals and will be open to us having a second opinion, part of me is nervous to pursue this for fear of learning things with her vision are worse than we thought, or that her current treatment has not been the right thing for her. But, thanks to the encouragement of my wonderful husband, I made the phone call today to our current doctor. Her medical assistant wrote all of my concerns down and said that she would have the doctor call us tomorrow to discuss it but that if we would like, they would refer for us for a second opinion as well.
I have done a lot of reading to prepare for the phone call already and have all my concerns written down to address with her tomorrow. Now I just have to sit by the phone and wait.
